2018 Support Group meetings are held at Maine Medical Center in the East Tower. Go in the Main Entrance, classrooms are on the first floor to the right of the information desk. The meetings are from 11:30 – 1:30.
February 26 (Room 4)
April 30 (Room 4)
July 30 (Room 4)
August 26 (Patient Forum meets at Spring Meadows in Gray – more details to come about this meeting)
October 28 (Room 4)
December (Holiday Dinner – tba)
Registration: If planning to attend, please RSVP to Jeannette 1 week prior to meeting date at 282-5939 or email firstname.lastname@example.org.
I have attached the meetings which are being held in Bangor and Portland for the upcoming year. All meetings will have lunch provided at the meeting.
As the flyer states, if you plan on attending a meeting, please rsvp to me one week prior to the meeting.
I hope to see you on Wednesday, September 27 at the Portland meeting. Maine Medical Center, room 2.
The Portland meetings is held at Maine Medical Center in the East Tower. Go in the Main Entrance, classrooms are on the first floor to the right of the welcome desk. The meetings are from 11:30 – 1:00. Lunch will be provided.
Please RSVP to Jeannette at
282-5939 or email email@example.com one week prior to meeting date if planning to attend.
(Need a count for lunch.)
Hope to see you soon!
On Nov. 7th Ian Morrill and Jesse Beer will be running the Spartan Sprint Race at Fenway Park, Boston. (For more information on the Reebok Spartan Sprint go to <www.spartan.com> 3 + miles and 20+ obstacles.) They are running the race on behalf of Uphill Journeys, a non-profit organization. They are proud to sponsor and be a part of theis organization that helps fight against, and raise awareness of pulmonary hypertension, a terminal illness. Please donate money to this organization and join in the fight against PH. Click on the red GoFundMe to make your donation, GoFundMe Thank you
It is now possible for sponsors and/or golfers to complete an online registration for the upcoming “Swinging for a Cure Golf Tournament” to be held Monday, Sept. 28th at the Martindale Country Club in Auburn. Direct your friends, relatives, neighbors and others to the following website: <https://fundraising.mmc/2015UPHillGolfRegistration>. This website will allow donors and golfers to enter their information and donate online. Donors will receive an automatic email tax letter acknowledging their gift. Please help to support the mission of UPHill Journeys by making this the 9th annual golf tournament a great success!
The 2015 PH Forum was another great success. A HUGE thank you to Leslie Oygar, MPH, RN, BSN for her delightful and informative presentation on nutrition; Dr. Aaron Waxman for his overview and demonstration of the implantable pump; and Dr. Joel Wirth for collaborating with Dr. Waxman on a general discussion on advances in PAH treatment; and Dr. Wirth’s overview of the origin, development, and implementation of the accreditation process for PH Care Centers.
The Forum, which was held at Homewood Suites was well attended with nearly 30 in attendance. If you have ideas for topics (other than oxygen therapy which has already been suggested) that you would like to see addressed in future forums, please email Jeannette at JMMorrill15@gmail.com
Portland Holiday Party being held on December 16th, 2014.
The party will be held at Chili’s in South Portland. Chili’s is located at 465 Maine Mall Road. To register if attending, please contact Jeannette at 207-695-3042 (can leave a message) by Dec. 10th. If you would rather email her she may be contacted at firstname.lastname@example.org. We will be having our traditional Yankee gift swap. No more than $10 for the swap gift.
Bangor Holiday Party being held on December 15th, 2014.
The party will be held at Governor’s in Bangor. Governor’s is located at 643 Broadway. To register if attending, please contact Jeannette at 207-695-3042 (can leave a message) by Dec. 10th. If you would rather email her she may be contacted at email@example.com. We will be having our traditional Yankee gift swap. No more than $10 for the swap gift.
Thanks to the Pulmonary Hypertension Association Support Group Central Fund for sponsoring our meetings’ refreshments and meal. The Support Group Central Fund is made possible by Platinum level sponsorships from Actelion Pharmaceutical, United Therapeutics, and Bayer HealthCare and a golf level sponsorship from Gilead Sciences, Inc.
The support groups are for anyone interested in learning about or is affected by pulmonary hypertension. It is for patients, caregivers, family and friends of patients who have pulmonary hypertension. It gives us, the patients, a chance to meet others with pulmonary hypertension; a time for sharing thoughts and fears; sharing hopes and talking about therapies available to us.
Pulmonary Hypertension Awareness Day
UPHill Journeys & PHA
Monday, December 1, 2014 from 10:00 am to 2:00 pm at Maine Medical Center in the main lobby.
Pulmonary Hypertension Awareness Day will be held as part of the effort to raise awareness about this disease. Information about PH will be available. Come and be a part of this effort to raise awareness!